Clinical trial Archives - Le ali di Camilla

17 April 2023

“I just wanted to speak to someone- and there was no one…”: using Burden of Treatment Theory to understand the impact of a novel ATMP on early recipients

Orphanet J Rare Dis. 2023 Apr 17;18(1):86. doi: 10.1186/s13023-023-02680-y. PMID: 37069697; PMCID: PMC10111696. “I just wanted to speak to someone- and there was no one…”: using […]

4 July 2023

BG04 Oleogel-S10 (birch triterpenes) in the treatment of epidermolysis bullosa wounds: 24-month efficacy and safety data from the EASE study

Keywords: Oleogel-S10, Amryt, Abstract

7 July 2023

Heterogeneity of reported outcomes in epidermolysis bullosa clinical research: a scoping review as a first step towards outcome harmonization

Br J Dermatol. 2023 Jul 7;189(1):80-90. doi: 10.1093/bjd/ljad077. PMID: 37098154. Heterogeneity of reported outcomes in epidermolysis bullosa clinical research: a scoping review as a first step […]

7 July 2023

Epidermolysis bullosa: time to come together for better outcomes

Br J Dermatol. 2023 Jul 7;189(1):5. doi: 10.1093/bjd/ljad123. PMID: 37067920. Epidermolysis bullosa: time to come together for better outcomes Authors: Gabriela Petrof 1, Anna E Martinez 1 Affiliation: Abstract: […]